Seven years ago, my mom “Joanie” was diagnosed with Thrombotic Thrombocytopenic Purpura {TTP}, a rare, life threatening auto-immune blood disorder that took her life within four months. More on her story told by my dad {here}. Today, I join TTP survivors and supporters for Answering TTP’s International TTP Day to raise funds and awareness. Without treatment 95% of TTP patients die. Delayed diagnosis leads to irreversible complications from heart attack, stroke, kidney failure and death. No dollar amount is too small. Donate directly to Answering TTP {here}.
From the moment I was old enough to walk, Joanie and I would hit the streets to shop ’til we dropped! She taught me the art of accessorizing. We would visit our local optical boutiques to shop for new frames. We bonded over trying on glasses together. In celebration of Joanie’s birthday last month, I created Be Seen Chains for TTP to raise TTP awareness.
50% to 100% of each purchase will be donated to Answering TTP Foundation to help raise funds for much needed research, education, and patient support to help ease treatment and ultimately find a cure for TTP. “Research is Hope. Awareness is Low. Early Diagnosis is Key.”